Hereditary Hemorrhagic Telangiectasia (HHT) Center
Cooperative agreements fund domestic organizations to partner with clinical centers to expand access and coordination of care for hereditary hemorrhagic telangiectasia, improve clinician identification and diagnosis, and build a de-identified aggregate patient registry on this rare disease and its outcomes.
⚑ HRSA cooperative agreement; primary purpose is care coordination/access plus registry development, not investigator-initiated research. · Domestic applicants only per notice definition.
Unit fits — one characterization, each unit's own rules
| Physical Sciences & Engineering (demo) | 50 partial | technical depth: substantial; funds service delivery (capped) |
| IPPRA | 40 partial | peripheral portfolio topic: public_health; signature methods: community engaged; social/behavioral work is minor; funds service delivery, not research (capped); biomedical core — IPPRA health lane is communication/crisis/policy (capped); capped at 40 (non-research funding) |
| Tom Love Innovation Hub | 15 none | deep-tech content; no commercialization signal |
Description
The purpose of the Hereditary Hemorrhagic Telangiectasia (HHT) Center Program is to reduce illness and death related to HHT by partnering with clinical center to expand access and coordination of care; creating innovative strategies that support clinicians with identifying and diagnosing HHT cases; and developing a de-identified, aggregate patient data registry to better understand this rare disease and its treatment outcomes.
Eligibility
"Domestic" means the 50 states, the District of Columbia, the Commonwealth of Puerto Rico, the Northern Mariana Islands, American Samoa, Guam, the U.S. Virgin Islands, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau.
Apply
View on Grants.gov → CONTACT: Health Resources and Services Administration <nwilliams1@hrsa.gov>
Proposal brief SEE AN EXAMPLE →
A one-page internal memo: fit assessment, submission requirements, document scaffold, and next steps dated back from the deadline — tailored to your project idea if you add one.
Proposal shell · HHS services agencies (SAMHSA / HRSA / CDC / ACF) conventions SEE AN HHS EXAMPLE →
Funder-faithful document skeletons — HHS services agencies (SAMHSA / HRSA / CDC / ACF)'s document set with section headings, page limits, reviewer guidance, and writing prompts; add a project idea to get [DRAFT] starter bullets. Download as .md for Word or Overleaf.
Legacy IPPRA LLM assessment (v2.0, for comparison)
18/100 · gpt-5.4-mini · 2026-07-06
This is a healthcare service/coordination cooperative agreement for a rare disease center, with a registry component, but it is primarily about clinical access, diagnosis support, and patient care rather than the kinds of social science, policy, or population-behavior research IPPRA leads. While a de-identified registry suggests some data infrastructure, the opportunity is not centered on research questions in IPPRA’s portfolio areas. Domestic public universities appear eligible, but the fit remains very limited.
Legacy scoring history
| 2026-07-06 | 18 | gpt-5.4-mini | This is a healthcare service/coordination cooperative agreement for a rare disease center, with a registry component, but it is primarily about clinical access, diagnosis support, and patient care rather than the kinds of social science, policy, or population-behavior research IPPRA leads. While a de-identified registry suggests some data infrastructure, the opportunity is not centered on research questions in IPPRA’s portfolio areas. Domestic public universities appear eligible, but the fit remains very limited. |
| 2026-07-06 | 8 | gpt-5.4-mini | This is a public health clinical-center cooperative agreement focused on a rare disease registry, care coordination, and clinician support for diagnosis. IPPRA’s strengths in survey research, risk communication, and behavioral/social policy analysis are not a natural fit for the primarily clinical and epidemiologic work, though a public university is eligible as a domestic applicant/partner. |